Publications and Contributions
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Journal Article, Academic JournalIt's About the Journey - Capturing Stories of the Fluctuating Experiences of Youth Kidney Transplant Patients (2024)Proceedings of the ACM on Human-Computer Interaction, 8(CSCW1), pp. 1-26, ISBN/ISSN: 2573-0142
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Journal Article, Academic JournalMy Kidney Identity: Contextualizing pediatric patients and their families kidney transplant journeys (2022)Pediatric Transplantation Journal, 26(7)
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Journal Article, Academic JournalReflecting on patient-generated photographs of the pediatric renal transplant experience (2021)Pediatric Transplant, 25(3), ISBN/ISSN: 1397-3142
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Conference PaperDesigning Inpatient Portals to Support Patient Agency and Dynamic Hospital Experiences (2020)AMIA Annual Symposium Proceedings
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Conference PaperThe Patient Advice System: A Technology Probe Study to Enable Peer Support in the Hospital (2020)Proceedings of the ACM on Human-Computer Interaction
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Conference Workshop PaperVR Spaces For Safe Places (2020)CHI 2020 Workshop on Technology Ecosystems: Rethinking Resources for Mental Health
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Conference Extended AbstractWhere Are My Parents?: Information Needs of Hospitalized Children (2020)CHI Conference on Human Factors in Computing Systems (CHI 2020)
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Journal Article, Academic JournalCreating Synthetic Patient Data to Support the Design and Evaluation of Novel Health Information Technology (2019)Journal of Biomedical Informatics, 95, pp. 103201, ISBN/ISSN: 1532-0464