Visually Encoding Personal Data for Vulnerable Populations
“How well did I sleep last night? How relaxed am I right now? Will I feel better or worse tomorrow?” Personal informatics and self-tracking systems contribute to the expectation that personal health and wellness questions like these can be answered with data. Because visualizations play a pivotal role in many PI systems by making tracking data available to end users, design decisions related to visual encodings are deeply implicated in perceived associations between self-knowledge and pervasive personal data. This is particularly true for vulnerable populations like those who self-track to manage serious mental illnesses. This talk will focus on a recent co-design project conducted in collaboration with individuals diagnosed with bipolar disorder, a serious mental illness characterized by difficult to predict mood swings and often controlled through therapeutic self-tracking. This work provides a basis for a discussion of 1) sense-making challenges related to the representation and interpretation of personal data and 2) the benefits, risks, and limitations of participatory approaches to designing personal data visualizations that better reflect lived experiences.
Jaime Snyder
Projects in Human-Computer Interaction
- Leveraging Collaborative Filtering for Personalized Behavior Modeling: A Case Study on Depression Detection among College Students
- On the Steppe: Plain Talk Imagining Technology Used Wisely
- Using Everyday Routines for Understanding Health Behaviors
- When Screen Time Isn’t Screen Time: Tensions and Needs Between Tweens and Their Parents During Nature-based Exploration
- Falx: Synthesis-Powered Visualization Authoring
- What Makes People Join Conspiracy Communities? Role of Social Factors in Conspiracy Engagement
- Visually Encoding Personal Data for Vulnerable Populations
- Who Are You Asking?: Qualitative Methods for Involving AAC Users as Primary Research Participants
- Where Are My Parents?: Information Needs of Hospitalized Children
- Parenting with Alexa: Exploring the Introduction of Smart Speakers on Family Dynamics
- “Eavesdropping”: An Information Source for Inpatients
- Detecting Depression and Predicting its Onset Using Longitudinal Symptoms Captured by Passive Sensing: A Machine Learning Approach With Robust Feature Selection
- Mobile Assessment of Acute Effects of Marijuana on Cognitive Functioning in Young Adults: Observational Study
- Telling Stories: On Culturally Responsive Artificial Intelligence
- What Makes People Join Conspiracy Communities?: Role of Social Factors in Conspiracy Engagement
- Early adopters of a low vision head-mounted assistive technology
- Being (In)Visible: Privacy, Transparency, and Disclosure in the Self-Management of Bipolar Disorder
- Visualizing Personal Rhythms: A Critical Visual Analysis of Mental Health in Flux