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Research

Being (In)Visible: Privacy, Transparency, and Disclosure in the Self-Management of Bipolar Disorder

Research in personal informatics (PI) calls for systems to sup- port social forms of tracking, raising questions about how privacy can and should support intentionally sharing sensitive health information. We focus on the case of personal data related to the self-tracking of bipolar disorder (BD) in order to explore the ways in which disclosure activities intersect with other privacy experiences. While research in HCI of- ten discusses privacy as a disclosure activity, this does not reflect the ways in which privacy can be passively experienced. In this paper we broaden conceptions of privacy by defining transparency experiences and contributing factors in contrast to disclosure activities and preferences. Next, we ground this theoretical move in empirical analysis of personal narratives shared by people managing BD. We discuss the resulting emer- gent model of transparency in terms of implications for the design of socially-enabled PI systems. CAUTION: This paper contains references to experiences of mental illness, including self-harm, depression, suicidal ideation, etc.

Read the full paper.

Justin Petelka

Lucy Van Kleunen

Liam Albright

Elizabeth Murnane

Stephen Voida

Jaime Snyder

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Projects in Sociotechnical Information Systems

  • How Music Fans Shape Commercial Music Services: A Case Study of BTS and ARMY
  • Visually Encoding Personal Data for Vulnerable Populations
  • Early adopters of a low vision head-mounted assistive technology
  • Being (In)Visible: Privacy, Transparency, and Disclosure in the Self-Management of Bipolar Disorder
  • Visualizing Personal Rhythms: A Critical Visual Analysis of Mental Health in Flux

News

Informatics student Ruth Nakigozi speaks to a woman in front of her poster.

RAISE expo highlights students' solutions to AI problems

Tuesday, October 21, 2025
Five Information School students were among dozens who shared insights from their research at the RAISE research center’s recent Fall Exposition in downtown Seattle. RAISE, the Center for Responsibility in AI Systems and...
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Canopy Foundation makes $15M grant to establish UW Neurodiversity and Employment Institute

Monday, October 20, 2025
The Canopy Neurodiversity Foundation awarded a $15 million grant to the University of Washington Information School to support the launch of the UW Institute for Neurodiversity and Employment. The new institute will bring together leading...
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Case Study Challenge Series: Part 2

Husky Union Building 307
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